Showing posts with label inspiration. Show all posts
Showing posts with label inspiration. Show all posts

Sunday, July 31, 2022

A Parking Lot Story

“Please, Sir, please help me!” cried an old lady as we passed her by while we look for a parking spot near the supermarket earlier today. She was standing in the middle of the parking lot with a pushcart and a bag of groceries inside it. My husband stopped the car and she came nearer. 

“Please, can you bring me to my house? I live at **** street. Please!” she begged us. Hubby and I looked at each other before I stepped out of the car. Hubby asked her if she’s with anyone and the old lady said she lives alone and the bus hasn’t come by in the past hour. Because it’s a Sunday, bus schedules do tend to be erratic on weekends when there aren’t students and a lot of workers needing a ride.

Without being prompted, she hurriedly took the passenger seat I vacated. Probably because she was afraid we’d change our minds. I told hubby I’d go ahead and buy the groceries while he brings the old lady home. 

“Mag-ingat ka ha!” (Take care of yourself!) I said in Tagalog, a bit apprehensive at the thought that there’s a possibility of scamming and that our vehicle might end up being carjacked or something. In my defense, it’s hard to trust people nowadays given all the bad elements being reported in the news daily!

Anyhow, off they went as I entered the grocery store. Every now and then, I'd check hubby’s location in Google Maps while praying he’s okay. Long story short, he arrived just as I finished paying at the cash register.

On our way home, he told me what he and the old lady talked about during the ride. He found out that she’s a widow and is renting a small room. 

“Are you Filipino?” she wanted to know. “Yes,” said my hubby. 

“Oh, I know other Filipinos. They’re very nice, too!” 

The old lady then inquired if he has drinking water in the car because she’s already dehydrated and was afraid she might pass out while waiting for the bus. Unfortunately, we’ve already drank all the beverages we brought earlier. 

Asked about her kids, she said they live a few cities away and she only gets to see them when she asks if she can visit her grandkids. When they invite her over, she takes the bus to go there. They don’t fetch her with their cars.

“Why don’t you just live with them so they can take care of you?” asked hubby.

“Oh no, no! They have their own lives now. And I’m fine where I am,” she replied.    

I felt really sad upon hearing that part because she definitely wasn’t fine when we met her and it seems like her kids do not even check up on her often enough to make sure she’s doing all right.

I am thankful though that we were able to help her get home safely. I pray that if she experiences the same thing in the future, she’ll encounter other people whose desire to help would also win over any apprehensions. 

With so many bad things happening all around us, it’s so easy to say NO to a stranger’s request for personal safety’s sake. But, I hope that after reading this, you may also be led to listen to that inner voice telling you to go ahead and let God take care of the rest.


Wednesday, May 18, 2022

Full Transcript of Taylor Swift's NYU 2022 Commencement Speech

So I listened several times to Taylor Swift's speech when she accepted her Honorary Doctorate Degree earlier today from New York University at Yankee Stadium and ended up transcribing it so I can just read it whenever I need some encouragement. In case you'd like more information why she received the degree of Doctor of Fine Arts Honoris Causa, please read my previous blog post.

As someone who also loves to write, one of the first things that made me a Certified Swiftie was the way Taylor cleverly weaves words into things of beauty. Many times, after listening to her songs and interviews, I am left amazed and inspired.

In this blog post, I would just like to honor this woman who keeps motivating me and millions of others with her insightful takes about life. I hope you who are reading this would also appreciate the many nuggets of wisdom she shared ...


Hi, I’m Taylor.


Last time I was in a stadium this size, I was dancing in heels and wearing a glittery leotard. This outfit is much more comfortable. 


I would like to say a huge thank you to NYU‘s Chairman of the Board of Trustees, Bill Berkeley and all the trustees and members of the board, NYU’s President Andrew Hamilton, Provost Katherine Fleming, and the faculty and alumni here today who have made this day possible. 

I feel so proud to share this day with my fellow honorees Susan Hockfield and Felix Matos Rodriguez, who humble me with the ways they improve our world with their work. As for me, I’m 90% sure the main reason I’m here is because I have a song called "22". And let me just say, I am elated to be here with you today as we celebrate and graduate New York University’s Class of 2022.


Not a single one of us here today has done it alone. We are each a patchwork quilt of those who have loved us, those who have believed in our futures, those who showed us empathy and kindness or told us the truth even when it wasn’t easy to hear. Those who told us we could do it when there was absolutely no proof of that. 


Someone read stories to you and taught you to dream and offered up some moral code of right and wrong for you to try and live by. Someone tried their best to explain every concept in this insanely complex world to the child that was you as you asked a bazillion questions like, “How does the moon work?” and “Why can we eat salad but not grass?" 

And maybe they didn’t do it perfectly. No one ever can. Maybe they aren’t with us anymore, and in that case I hope you’ll remember them today. If they are here in this stadium, I hope you’ll find your own way to express your gratitude for all the steps and missteps that have led us to this common destination.  


I know that words are supposed to be my “thing,” but I will never be able to find the words to thank my mom and dad, my brother Austin, for the sacrifices they made every day so that I could go from singing in coffee houses to standing up here with you all today because no words would ever be enough. 


To all the incredible parents, family members, mentors, teachers, allies, friends, and loved ones here today who have supported these students in their pursuit of educational enrichment, let me say to you now — Welcome to New York, it’s been waiting for you.  

I’d like to thank NYU for making me, technically on paper at least, a doctor. Not the type of doctor you would want around in the case of an emergency; unless your specific emergency was that you desperately needed to hear a song with a catchy hook and an intensely cathartic bridge section. Or, if your emergency was that you needed a person who can name over 50 breeds of cats in one minute.


I never got to have the normal college experience, per se. I went to public high school until tenth grade and then finished my education doing homeschool work on the floors of airport terminals. Then I went out on the road for radio tour, which sounds incredibly glamorous but, in reality, it consisted of a rental car, motels, and my mom and I pretending to have loud mother-daughter fights with each other during boarding so no one would want the empty seat between us on Southwest. 


As a kid, I always thought I would go away to college, imagining the posters I’d hang on the wall of my freshmen dorm. I even set the ending of my music video for my song Love Story at my fantasy imaginary college, where I meet a male model reading a book on the grass and with one single glance, we realize we had been in love in our past lives. Which is exactly what you guys all experienced at some point in the last four years, right? 

But I really can’t complain about not having a normal college experience to you because you went to NYU during a global pandemic; being essentially locked into your dorms and having to do classes over Zoom. Everyone in college during normal times stresses about test scores, but on top of that, you also had to pass like a thousand COVID tests


I imagine the idea of a normal college experience was all you wanted, too. But in this case, you and I both learned that you don’t always get all the things in the bag that you selected from the menu in the delivery service that is life. You get what you get. And as I would like to say to you, wholeheartedly, you should be very proud of what you’ve done with it. Today, you leave New York University and then you go out into the world searching what’s next.  And so will I.


So as a rule, I try not to give anyone unsolicited advice unless they ask for it. I’ll go into this more later. I guess I have been officially solicited in this situation to impart whatever wisdom I might have, to tell you things that has helped me so far in my life. Please bear in mind that I, in no way, feel qualified to tell you what to do. You’ve worked and struggled and sacrificed and studied and dreamed your way here today and so, you know what you’re doing. You’ll do things differently than I did them and for different reasons. 

So I won’t tell you what to do ‘coz no one likes that. I will, however, give you some life hacks I wish I knew when I was starting out my dreams of a career and navigating life, love, pressure, choices, shame, hope, and friendship.


The first of which is — life can be heavy, especially if you try to carry it all at once. Part of growing up and moving into new chapters of your life is about catch and release. What I mean by that is knowing what things to keep and what things to release. You can’t carry all things, all grudges, all updates on your ex, all enviable promotions your school bully got at the hedge fund his uncle started. Decide what is yours to hold and let the rest go. Oftentimes, the good things in your life are lighter anyway, so there’s more room for them. One toxic relationship can outweigh so many wonderful, simple joys. You get to pick what your life has time and room for. Be discerning. 


Secondly, learn to live alongside cringe. No matter how hard you try to avoid being cringe, you will look back on your life and cringe retrospectively. Cringe is unavoidable over a lifetime. Even the term “cringe” might someday be deemed “cringe.” I promise you, you’re probably doing or wearing something right now that you will look back on later and find revolting and hilarious. You can’t avoid it, so don’t try to. 


For example, I had a phase where, for the entirety of 2012, I dressed like a 1950s housewife. But you know what? I was having fun. Trends and phases are fun. Looking back and laughing is fun. And while we’re talking about things that make us squirm but really shouldn’t, I’d like to say that I’m a big advocate for not hiding your enthusiasm for things. 

It seems to me that there is a false stigma around eagerness in our culture of unbothered ambivalence. This outlook perpetuates the idea that it’s not cool to “want it.” That people who don’t try are fundamentally more chic than people who do. And I wouldn’t know because I’ve been a lot of things but I’ve never been an expert on chic. But I’m the one who’s up here so you have to listen to me when I say this -- Never be ashamed of trying. Effortlessness is a myth! The people who wanted it the least were the ones I wanted to date and be friends with in high school. The people who want it most are the people I now hire to work for my company. 


I started writing songs when I was 12 and since then, it’s been the compass guiding my life and, in turn, my life guided my writing. Everything I do is just an extension of my writing, whether it’s directing videos or a short film, creating the visuals for a tour, or standing on a stage performing. Everything is connected by my love of the craft, the thrill of working through ideas and narrowing them down, and polishing it all up in the end; editing, waking up in the middle of the night, and throwing out the old idea because you just thought of a newer, better one or a plot device that ties the whole thing together. There’s a reason they call it a hook. Sometimes a string of words just ensnares me and I can’t focus on anything until it’s been recorded or written down. 


As a songwriter, I’ve never been able to sit still, or stay in one creative place for too long. I’ve made and released 11 albums and in the process, I’ve switched genres from country to pop to alternative to folk. And this might sound like a very songwriter-centric line of discussion but in a way, I really do think we are all writers. And most of us write in a different voice for different situations. 

You write differently in your Instagram stories than you do your senior thesis. You send a different type of email to your boss than you do your best friend from home. We are all literary chameleons and I think it’s fascinating. It’s just a continuation of the idea that we are so many things all the time. And I know it can be really overwhelming figuring out who to be and when, who you are now, and how to act in order to get where you want to go. 


I have some good news — it’s totally up to you. 


I have some terrifying news — it’s totally up to you! 


I said to you earlier that I don’t ever offer advice unless someone asks me for it and now I’ll tell you why. As a person who started my very public career at the age of 15, it came with a price. And that price was years of unsolicited advice. Being the youngest person in every room for over a decade meant that I was constantly being issued warnings from older members of the music industry, media, interviewers, executives. And this advice often presented itself as thinly veiled warnings. See, I was a teenager, at a time when our society was absolutely obsessed with the idea of having perfect young female role models. It felt like every interview I did included slight barbs by the interviewer about me one day “running off the rails.”And that meant a different thing to every one person who said it to me. 

So I became a young adult while being fed the message that if I didn’t make any mistakes, all the children of America would grow up to be perfect angels. However, if I did slip up, the entire earth would fall off its axis and it would be entirely my fault and I would go to pop star jail forever and ever. 


It was all centered around the idea that mistakes equal failure and ultimately, the loss of any chance at a happy or rewarding life. This has not been my experience. My experience has been that my mistakes led to the best things in my life. And being embarrassed when you mess up is part of the human experience. Getting back up, dusting yourself off, and seeing who still wants to hang out with you afterward and laugh about it? That’s a gift.


The times I was told “no” or wasn’t included, wasn’t chosen, didn’t win, didn’t make the cut — looking back, it really feels like those moments were as important, if not more crucial, than the moments I was told “yes.” 

Not being invited to the parties and sleepovers in my hometown made me feel hopelessly lonely. But because I felt alone, I would sit in my room and write the songs that would get me a ticket somewhere else. Having label executives in Nashville tell me that only 35-year-old housewives listen to country music and there was no place for a 13-year-old on their roster made me cry in the car on the way home. But then I’d post my songs on my MySpace — yes, MySpace — and I would message with other teenagers like me who loved country music but just didn’t have anyone singing from their perspective. 


Having journalists write in-depth, oftentimes critical, pieces about who they perceive me to be made me feel like I was living in some weird simulation. But it also made me look inward to learn about who I actually am. Having the world treat my love life like a spectator sport in which I lose every single game was not a great way to date in my teens and twenties! But it taught me to protect my private life fiercely. 


Being publicly humiliated over and over again at a young age was excruciatingly painful but it forced me to devalue the ridiculous notion of minute by minute, ever-fluctuating social relevance and likability. Getting canceled on the internet and nearly losing my career gave me an excellent knowledge of all the types of wine. 

I know I sound like a consummate optimist, but I’m really not. I lose perspective all the time. Sometimes everything just feels completely pointless. I know the pressure of living your life through the lens of perfectionism. And I know that I’m talking to a group of perfectionists because you are here today graduating from NYU. So this might be hard for you to hear. 


In your life, you will inevitably misspeak, trust the wrong person, under-react, overreact, hurt the people who didn’t deserve it, overthink, not think at all, self-sabotage, create a reality where only your experience exists, ruin perfectly good moments for yourself and others, deny any wrongdoing, not take the steps to make it right, feel very guilty, let the guilt eat at you, hit rock bottom, finally address the pain you caused, try to do better next time. Rinse. Repeat.  


And I’m not gonna lie. These mistakes will cause you to lose things. I’m trying to tell you that losing things doesn’t just mean losing. A lot of the time, when we lose things, we gain things too.  

Now you leave the structure and framework of school and chart your own path. Every choice you make leads to the next choice which leads to the next, and I know it’s hard to know which path to take. There will be times in life where you need to stand up for yourself; times when the right thing is actually to back down and apologize, times when the right thing is to fight, times when the right thing is to turn and run, times to hold on with all you have, and times to let go with grace. 


Sometimes the right thing to do is to throw out the old schools of thought in the name of progress and reform. Sometimes the right thing to do is to sit and listen to the wisdom of those who have come before us. How will you know what the right choice is in these crucial moments? You won’t. How do I give advice to this many people about their life choices? I won’t.


The scary news is — you’re on your own now.


But the cool news is — You’re on your own now!

I leave you with this. We are led by our gut instincts, our intuition, our desires and fears, our scars, and our dreams. And you will screw it up sometimes. So will I. And when I do, you will most likely read about it on the internet! 


Anyway, hard things will happen to us. We will recover. We will learn from it. We will grow more resilient because of it. As long as we are fortunate enough to be breathing, we will breathe in, breathe through, breathe deep, breathe out. And I’m a doctor now, so I know how breathing works. 


I hope you know how proud I am to share this day with you. We’re doing this together. So let’s just keep dancing like we’re — The Class of ’22!


* Photos are screenshots from NYU's YouTube video. No copyright infringement intended. 

 

Saturday, January 02, 2021

How Auld Lang Syne Sounds When Played on a Tongue Drum

Happy New Year, everyone! Since most of us preferred to usher in 2021 at home, I'm sure that like us, you also found various ways to keep yourselves entertained. 


Sometime in May 2019, I bought a tongue drum online to make music with. I originally wanted to have a hang drum that sounds so much better but found the prices way out of my budget. So I settled for this one and it's been nice playing it for fun. It has even become a conversation piece whenever we had (pre-pandemic) guests over. 

Anyhow, here's sharing a simple, non-professional rendition of Auld Lang Syne on a 10-inch 11-note tongue drum that my non-verbal son with special needs found entertaining. 


Whether it was simple or grand, I hope your New Year's celebration with the people you love was a joyous one :)


Thursday, December 31, 2020

Why 2020 is an Intermission Year for All of Us

It's the end of 2020! How excited are we to usher in a New Year filled with hope and better things to come? While the past months have been challenging and splattered with a lot of heartbreaks, those shouldn't prevent us from looking forward to the coming days! 

screencaptured, no copyright infringement intended

I'm currently watching a Korean drama series titled Thirty But Seventeen and a conversation between the two lead actors made me pause and contemplate. I had to rewind the clip to capture the words which I think would also resonate with many of you.

Woo Seo-ri: "You know what an intermission is, right?"

Gong Woo-jin: "A break time during a musical or a show?"

Seo-ri: "Yes. Whenever I went to concerts as a kid, I really loved intermissions. 'Thank goodness, it's not over yet. There's still more left. What kind of cool performances will they do now?' I feel like I'm in an intermission now. I'm taking a break for a moment while waiting for the next cool performance. The intermission of my life. That's why I'm okay. It's not over. I'm [just] taking a break. My heart's racing. I'm waiting for the cool stage to come. I'm just on pause right now."

The backstory is that Seo-ri, a violinist, was in a coma for more than 10 years and woke up as an adult instead of a teenager. She wasn't able to attend a prestigious music school abroad as planned and her hands can no longer play the violin like they used to.

Goodbye 2020!

I appreciate how writer Jo Sung-Hee was able to beautifully express this sentiment in words. I think many of us feel the same way about this year. We have been put on pause due to circumstances beyond our control. And yet, by merely surviving day to day, month after month, we're still here ready to face a new year with dreams of a brighter future.

So, as we leave 2020 behind, I hope you, too, can just consider this year as an intermission while waiting for the next cool performance of our lives. Happy New Year, everyone! :)


Saturday, August 29, 2020

JOMO over FOMO?

"We should learn to savor some moments to let time feel worth existing." 
~ Munia Khan


I recently came across the acronym JOMO. It's supposed to mean "Joy Of Missing Out," the exact opposite of the more famous FOMO or Fear of Missing Out.


I was happy to be reminded that we shouldn't rush or be anxious about accomplishing so many things all at once like a lot of people believe we should.


Yes, I'm looking forward to doing more stuff in the coming days, weeks, and years but I try my best to be patient as I wait for things to fall into place. Meanwhile, I'm making an effort to enjoy the learnings along my journey.


This is me literally stopping to "smell the flowers" and savoring what life has to offer at this particular moment. Despite the heartaches that 2020 continues to bring, there are still silver linings on many corners. Let's make time to notice and appreciate them 💚


Have a wonderful weekend, everyone!


Thursday, July 02, 2020

Can You Grow Malunggay / Moringa in a Pot? Yes You Can!

In the Philippines, malunggay are staple greens that we often use for cooking. When we lived in Alabang, we had a huge tree beside the house where it's very convenient to cut stalks upon stalks without worrying about running out of leaves.

August 2018

It was a very different story when we moved to Southern California almost three years ago. When we wanted to cook Tinola, a few stalks of malunggay at the Filipino supermarket would cost the same as, or even more than, two pounds (about a kilo) of chicken. I'm serious! So we'd resort to buying spinach instead because they're cheaper. 

from small to big pot

In late November 2017, my mother-in-law bought us a malunggay seedling for $5.00 at a swap meet where some fellow Pinoys were selling plants. By winter, the leaves were all gone and we were left with just a stick in a pot. Because I could still see some green parts on the main stem, I diligently watered the pot every two days. 

May 2018

Come spring, I was rewarded with tiny buds that eventually grew into branches with leaves. By August 2018 (see topmost photo), we were able to harvest a batch which we happily added to home-cooked Chicken Tinola.    

March vs. May 2020

Fast-forward to my family's move from my sister-in-law's townhouse to our own apartment in November 2018 where we brought the big pot of malunggay with us. Again, it hibernated during the winter but bloomed once more come spring and summer and we were able to harvest two or three times before it stopped growing new leaves in the fall.


It's 2020 now and I'm happy to report that our malunggay tree is still healthy and thriving. We actually had the first harvest recently and the main trunk is slowly recovering to bring out more leaves. Someday, when we finally get to buy a house of our own, I pray that this tree, the very first plant I took care of here in the U.S. would have its own spot in a nice garden and finally planted on the ground :)


Sunday, May 31, 2020

Making Memories in the Month of May

So, were you able to #MakeMayMatter? It's the end of a seemingly longer than usual month but, instead of thinking about the things that continue to go wrong in this planet, I'd like to express gratitude instead for the things that went right:

nature appreciation :)
🎂 I turned a year older
🌳 Hubby and I got to explore new hiking trails and started a new habit of communing with nature at least once a week
🌺 I had a ball taking pictures of a wide variety of flowers (even weeds!) and lots of beautiful sceneries
👩‍🍳 I got to prepare many homecooked meals for my family
🍊 We have easy access to buying fresh fruits and vegetables in various stores nearby
♿ While not being to go outside, our #GideonJamesJourney remains happy and healthy
💵 God continues to provide for our financial needs and we were able to share some of our blessings to those who needed them
🖥️ Thanks to technology, we are able to communicate regularly with family and friends living halfway around the world
🌱 My tiny garden of potted plants are doing well and bringing me much joy

There are more to this list but these are the top ones I am most thankful for. If you're also making a similar list, what would be in there? 😉


Saturday, October 05, 2019

Shane's Inspiration: Los Angeles' Wonderful Inclusive Playground

Two weeks ago, my husband and I brought Gideon James to yet another park we haven't visited before. While it was nice to stroll around the winding pathways and enjoy the beauty of nature, we were once again disappointed that there's nothing in the playground that can cater to our young man's condition. Since James has very poor trunk and head control, a regular swing seat poses a lot of dangers for him.

James was all smiles at his first time to ride an accessible swing!
Frustrated, I posted a photo on Instagram asking for inclusive playground recommendations. As fairly new residents of Southern California, we are continuously exploring and looking for accessibility-friendly places. Thankfully, IG users @mely_furtado and @jenntmqz left comments on my post. They both suggested we check out @shanesplay so I excitedly researched about it and found out that Shane's Inspiration, located within Griffith Park, is approximately 29 miles away from our place. Since it's a bit far, I promised myself to find an opportunity soon to bring my son there.

this playground set has special features that kids of all abilities would love
The other day, our family attended a Conservatorship court appearance schedule in downtown Los Angeles. Hubby and our second son took the whole day off work so we could also visit the playground in the afternoon. We are sooooo happy we did! 

watch this video to see just how much fun James had!

I think James didn't quite know what to expect when his dad sat him down on the swing with protective harness because it took a while for him to realize what's going on. But once the swing got moving and he saw how happy we were, he started smiling and laughing with us! 

the playground floor is made of a soft padded material
that even babies can crawl on it without hurting their sensitive skin!
We also had James ride the awesome zip line seat that was likewise designed with safety features. His big grins told us how much he enjoyed the new experience.

making music with Daddy was so much fun!
Before we left, we also had James try playing the huge xylophone and hand drum. It was so great to also see other babies and children having a go at the many installations in this very special playground. I am beyond grateful to everyone who made this place possible. Thank you very, very much!

a basketball court for all ages
Read here how loving parents Catherine Curry-Williams and Scott Williams conceptualized this wonderful playground in honor of their son, Shane Alexander. You, too, can visit Shane's Inspiration at 4800 Crystal Springs Drive, Los Angeles, CA 90027.

Thank you, Shane's Inspiration! We'll visit again, soon!
Make sure to use Google Maps to get there because the playground can be quite challenging to find with some sharp turns that you might miss if you don't have specific driving directions. Enjoy! I hope fellow parents who also have differently-abled children would find this information useful :)  


Thursday, January 24, 2019

Today, My Son "Walked" For the Very First Time With the Help of Trexo Robotics!

Those who have been following this blog and have read my book, Embracing Disability This Ability, already know that James, my son with cerebral palsy, could not talk nor walk and can't even sit up by himself without the seat belts and harnesses on his wheelchair and car seat. But, despite James' limitations, our family continues to find ways in making his life better. We also keep praying and hoping for further signs of development on how he communicates and moves. 

seeing James walk used to be just a dream
Since we moved to California in November 2017, James is still yet to have physical and occupational therapy services due to several factors, one of which is his transition from child to adult under the state's health care services system after he turned 21 last September. While we patiently wait for things to fall into place, I actively seek connections with organizations and caring individuals who have the heart to help the special needs community.  

Last week, Canadian-based Trexo Robotics announced that they will be coming to Los Angeles for two days to allow mobility-challenged kids try their awesome device. I have been following their posts on Instagram for quite a while now and find inspiration in the stories of children who are being helped to walk using Trexo's enabling technology.

Thank you so much, Manmeet, Rahul, and Dina for
giving James a chance to try the Trexo!
Without knowing where exactly they will be in LA, I resolved to bring James to them if they could give him a slot for a trial. I reached out to the Trexo team via direct messaging and got a call from COO Dina Nikitina on the phone who asked me a few questions. She then informed me the next day that they can accommodate us for January 24th at 10AM.

Early this morning, my husband, James, and I traveled 34 miles to Hawthorne where NAPA (Neurological and Physical Abilitation) Center is located. There, we met Dina as well as Trexo Robotics founders Manmeet Raggu and Rahul Udasi (read the wonderful story on how they started Trexo, here) who patiently helped James get comfortable in the walker with the robotic attachments before they got him "walking" using controls on a tablet.


For the first time in his life, James was able to move by himself with the help of technology and, while I focused on taking pictures and videos, it took me a lot of effort not to start crying upon seeing my son beaming big smiles while he took 199 steps in less than 10 minutes!

In individuals like James who hadn't experience how to walk independently and whose legs most likely do not know the correct motions needed to do this activity, I believe Trexo's innovative technology would be a big help in training the muscles and the brain to remember stepping movements through practice and repetition.

cherishing this new milestone in #gideonjamesjourney
After this Trexo trial, my husband and I plan to look for ways on how we could lease, if not buy, the device so James could practice walking more until such time he could, hopefully, graduate to a simple walker. We'd sincerely appreciate it if you could help us pray about this. Just like in the very beginning when we started in this special needs parenting journey, my family and I will keep on dreaming more dreams for this young man who never fails to give us immense joy each and every day.


Wednesday, October 31, 2018

4 Top Reasons I Fell in Love with Fall

My family arrived in the United States during fall so it holds a special place in my heart. After almost a year of living in California and experiencing fall for the second time, I can now list some of the things I love about this particular season! 😀 

enjoying our first autumn
1. The changing colors of the leaves is very fascinating especially from someone who has lived in a tropical country all her life before migrating to a country that has four seasons instead of just two. I take pleasure in seeing multi-colored leaves on the trees before they fall to the ground. Hopefully, my family and I could get to visit a place soon where there are a wider variety of trees sporting a profusion of colors.

colorful leaves!
2. The "sweater weather" is way more favorable for me than the bone-chilling cold of winter and early spring. It's nice to be able to feel the cool temperature without shaking uncontrollably and wishing I could put on more layers of clothing on top of the three I'm already wearing! 

afternoon walk with Daddy and James
Hands down, fall is a great time to go strolling around the neighborhood in the afternoons because the crisp and cozy weather won't make you sweat nor will it make you feel chilled. Also, you get to save on electricity because you just have to close the windows at night to feel warmer as there is no need yet to turn on the heater.  

brothers and cousins
3. The opportunity to visit a pumpkin patch, I believe, has become one of our favorite activities to do during fall. Our family went to one for the first time recently and we enjoyed taking a lot of photos while we marvel at the hundreds (maybe thousands?) of orange balls dotting the big field at Cal Poly in Pomona. Next year, I hope we can also have time to do some apple picking in one of the many orchards dotting California. 

our first Thanksgiving in the US
4. Having a reason to gather with extended family during Thanksgiving and express gratitude for all our blessings is one of fall's highlights that I deeply cherish. Last year, James and I arrived a week before this special day so it was a doubly joyous time for all of us because we became physically reunited again with our loved ones.   


I know my family and I still have to experience more things in the coming years to add to this list like Black Friday or Cyber Monday, perhaps? Give us time, I'm sure the day would come when this blog post would become longer. How about you? What do you love about the fall season? I'd appreciate it if you can share your answer/s in the comments section below 🍁


Wednesday, September 05, 2018

One Day at a Time -- Living with a Loved One Who Has Cerebral Palsy

He will die early,” said the seven-year-old boy solemnly before he walked away. I was left speechless, staring at his retreating figure. I am sharing this several years after the incident when I have finally found the inner peace to write about it.

16-year-old James
My family and I were at a party in my sister’s house and the kid was the son of one of their guests. The boy was talking about my then sixteen-year-old son, Gideon James, who looked like he was also only seven years old because he has cerebral palsy.

I don’t know exactly how the child arrived at such a conclusion after asking me questions when he saw me feeding my son blenderized food via a tube embedded in his stomach. But I guess, as many innocent children do, he made his statement based on what he thought was true.

one day old James 
I wasn’t really offended. Just a little bit shocked to hear that sentence spoken aloud. The last time someone had told me, “Your son will most likely die” was when my then barely one-month-old baby was fighting for his life inside an intensive care unit incubator. He proved his neonatologist wrong and continued to defy many other specialists’ prognoses in succeeding years.

My son is a warrior and a minister. He has been fighting obstacles and overcoming them since the day he was born. He may not be able to speak nor sit up by himself but from him, my husband, my three other children, and I acquired so many lessons that we would not otherwise have learned if he had grown up “normal” like his brothers.

1-year-old James (2nd from left) with brothers circa 1998
Over the years, our home has become a school of sorts for all the members of our family where we were taught much, over and over it seems, about patience, understanding, compassion, empathy, acceptance, faith, and prudence among many other things.

How different life could have been if my son doesn’t have cerebral palsy! And yet, I don’t think our family would have become the strong unit it is now without the trials we went through together because of our special child

8-year-old James (2nd from left) with his brothers circa 2005
People usually tell me they can’t imagine what they’ll do if something like this happened to them. And I assure them that they will find the strength they need if that time comes. When we got married, my husband and I never thought that we’d be given the kind of challenge we used to believe was only reserved for parents with unwavering faith and resourcefulness. Yet, we were chosen to be parents of a special child. And, so far, I believe we’ve been coping a lot better than we’d ever thought possible. 

Through James, we’ve met kindred souls who have little angels of their own. And through them all, we’ve been assured that we’re not taking this journey alone. We have a spiritual extended family with members who unselfishly share with us time, knowledge, advice, and even precious resources because they know how hard it is when you try to do it on your own. 

family pic 2014
I have long ago relinquished the question “Why me?” because a book, written by a mom who also has a child with special needs, gave me the push to instead ask, “Why not me?” I don’t remember the exact moment, or even if I did have one, when I had that imaginary bulb light up, and I realized that I am stronger emotionally and physically, more patient, and more resourceful than I’ve ever given myself credit for. 

Turning my thoughts away from “what if” to “what now” made me accept the positive possibilities that this kind of parenting continues to teach me and the rest of my family. I’ve come to wake up in the mornings with a big thought bubble that says, “Bring it on! I will overcome anything bad this day will throw at me!”

20-year-old James (March 2018) 
Still, there are times, when I am far too exhausted and vulnerable, when a niggling guilt would creep up on me and make me question if I had done something in the past that makes me responsible for my child’s condition. I am just thankful that those thoughts don’t come as often as before. In time, I’ve learned to forgive myself for those lapses of self-pity and anguish and instead pat myself on the back for doing my best and managing to survive the never-ending trials I deal with every day.

Special children don’t come with an instruction manual, but their families eventually discover what would work best for them. Ours did and my son gave us that rare chance to see the world through the eyes of someone who is not willing to be defeated by his disabilities. 

2016 family photo
The death of one’s child, I believe, is one of many parents’ greatest fears. For moms and dads of kids with special needs, that fear hovers constantly and is difficult to ignore. And yet, it is our very own special children who teach us to forget about being terrified because they are still here with us to provide light and joy in our lives.

As you read this book, whether you have a family member with special needs or not, may our story provide you with inspiration and hope that God is also looking out for you … always.

Embracing Disability This Ability
*Note: This article serves as the introduction section of my book "Embracing Disability This Ability: A Family's Journey with Cerebral Palsy" that will be launched on September 14, 2018 @ 5:30PM at the Manila International Book Fair (MIBF) by CSM PublishingThank you for reading! I pray that you will find encouragement and hope from our story :)  

*Edited 2019: Embracing Disability This Ability is now available in the Philippines at National Book Store, PCBS, and other bookstores nationwide as well as online from Lazada and Shopee. For those in the U.S. who are interested in getting a copy, please send me a private message via the Embracing This Ability Facebook pageBy the way, you can now read Chapter 1here.

*Edited 2021: Embracing Disability This Ability is now available as an eBook on Amazon! You can now purchase your copy, here: https://amzn.to/3v7SKGl. Thank you! 


Friday, August 10, 2018

Home Is Where the Heart Is -- Our Family's Migration Story

I love traveling and exploring new places, especially with my family. But on those instances when I have to travel for work, I always look forward to coming home and once more being with the people I love. 

Baguio City, circa 2001
When my husband Nonoy and I were still a young couple, we decided that working abroad and leaving the other behind to look after our four sons should never be an option. Especially since our third son, James, has special needs and requires the care of both parents, we agreed to face financial challenges together rather than choose to work overseas and earn more, but at the cost of just one parent raising the kids alone. 

We held on to our faith that God will see us through anything. And you know what? The Lord sustained us and provided for our needs, particularly during really trying times! Our prayer continued to be that if it was really God’s plan for one of us to work abroad, please let us go there as a whole family and not leave anyone behind.

New Year 2009
In Limbo

Several years ago, we found out that despite the passing of my USAFE (United States Army of the Far East) veteran father-in-law in 1999, the petition he filed in 1993 for my husband and Noy’s sister (my third sister-in-law) was approved. Moreover, the petition could be passed on to a family member who’s willing to continue the sponsorship.

My first sister-in-law, who lives in Guam, asked us if we’d like to pursue the petition. Knowing that the U.S. is a lot more medically and technologically advanced than our home country, Noy and I started dreaming of better opportunities for James, our son with cerebral palsy, and our three other sons. Once more, our prayer remained that, God willing, He would allow all six of us to migrate abroad.

New Year 2014
Around 2014, my two US-based sisters-in-law started doing everything they could to process our papers. They consulted an immigration lawyer who facilitated the changing of my husband’s petition category from single to married, and hired another attorney to ensure that our oldest son, who was about to turn 21, would not be denied a visa.

The back and forth submissions and approvals of documents took many, many months. Each time we thought we’d completed everything, we’d be asked to submit a certificate, another file, and another, and another until we were left wondering if that phase of submitting requirements would ever end.

For more than three years, our family felt like we were living in limbo, unable to make long-term plans, uncertain if we could really leave or not. Many times, we had prayer moments where we pleaded with God to just let us receive a yes or no answer from the United States Citizenship and Immigration Services so we can be done with the seemingly endless wait and move on with our lives. 

celebrating James' 17th birthday in 2014
Roller-Coaster Ride

In early May 2017, we finally received our visa interview scheduled for June at the U.S. Embassy. From experience, we anticipated more bumps ahead, but we held on to our faith that God will see us through until the end of the journey.

Unfortunately, two of our sons initially didn’t pass the U.S.-mandated medical exam and had to undergo additional tests. Only four of us went to the June interview where our eldest son, Rey, was almost denied a visa due to the “age-out” issue. Despite our pleas, the consul refused to look over the legal papers drafted by our lawyer proving that Rey was still a minor when the petition was reinstated.

We were all in tears as we approached the releasing section to receive further instructions. Obviously, it was impossible to feel elated about going home with just three visas instead of four. Mercifully, the lady at window scrutinized our documents thoroughly and told us to wait as she consulted her supervisor, who then returned our family’s thick file to the consul.

After what seemed like an eternity, we were called back to the window to be told that Rey would also be issued a visa. As always, God was watching over us!

June 2017 -- after the visa interview
(minus Rey who was already late for work after spending five hours in the U.S. Embassy) 
With plans to travel together, we waited for two months for James’ and Josh’s test results, only to find out that our special child had to undergo another series of medical clearances. Although a difficult decision, we all agreed that my husband and two sons should fly ahead to the U.S. in early September so that Daniel, the youngest, could still make it to senior high school enrollment.

Josh, who was approved for a visa in August, insisted he stay behind to help me take care of James while we waited another couple of months for more of his brother’s additional medical test results. 

The first month away from my husband and two sons was tough. Thankfully, the video calls, often-teary conversations, that we made almost every day helped us to cope. None of us thought things would get more difficult, but they did.

first batch to arrive in California greeted by my two sisters-in-law
Final hurdles

It was a long and stressful day when Josh and I brought James back to the St. Lukes Extension Clinic the day before my special child’s U.S. visa interview in October. After 13 hours of waiting and lots of hassles in between, he was finally given medical clearance. 

The next day, we encountered another problem with a missing document the consul asked for but which was already submitted during the June interview. So I had to re-submit a copy of the said file via courier a day later, unsure whether James would be issued a visa any time soon, or if they would ask again for additional papers that would further delay the process. 

With Josh’s visa expiring earlier than mine due to the additional medical tests he had to undergo, my second son had to be booked on a solo flight so he would arrive in the U.S. without any problems. This new development left James and me alone for another month.

James' 20th birthday without his dad and two brothers
Those weeks were probably some of the loneliest in our lives, when I realized that homesickness isn’t really tied to a physical place. Rather, it is about separation from desperately missed loved ones. Now I know firsthand that it is possible to be homesick for people, too! Our house in Alabang by then already felt like an empty shell.

As days turned into weeks with no visa in sight and no updates from the U.S. Embassy call center agents I talk to almost everyday, I began to wonder if I’d ever see my family again. Although I kept busy during the day packing and selling what’s left of our stuff, I would feel deep despair at night as I watched James sleep, while longing for my husband and other sons. Once more, faith in God’s plans kept us hoping for the best. 

It felt surreal when James’ visa finally arrived at the house and the mad scramble for last minute packing finally began. Despite my worries of how to survive a 20-hour trip with a wheelchair-bound child in tow plus four big pieces of luggage and another four carry on bags, my determination to do everything I could to be with my family was greater than any other hurdles I may still encounter.

saying goodbye to my extended family at the airport
Coming home

I was deeply grateful that my mom, siblings, and nieces arrived the day before our departure to help me clean the house and finalize everything before my son and I left for the airport. Their love and support were such a welcome reprieve from the loneliness of the past weeks. 

The date November 16, 2017 will forever remain in my memory as the day I finally found myself home again when I felt my husband’s arms around me the moment James and I emerged from LAX’s arrival ramp. All the apprehensions and exhaustion instantly faded away with the knowledge that we were, indeed, finally where we were supposed to be.

I’ve read somewhere that we will never know how strong we could be until being strong is the only option we have left. I can attest to that, given everything that we’ve been through since we started our immigration process.

California, March 2018 
I’m sharing our story to encourage other families to keep holding on to each other and to continue trusting in God’s leading in the midst of challenges and temporary separations. Have faith that He will see you through. Remember, too, that many times, life may take us to unexpected places, but love will always bring us home. 

NOTE: This story was originally published on pp. 17-19 in Family Matters Magazine's June-Aug 2018 issue, the digital copy of which can be found, here.